The Human Subjects and Clinical Phenotyping (HSCP) Core provides researchers with access to a full range of services to facilitate successful identification and recruitment of patients for basic, translational, and clinical research studies in rheumatic disease. The HSCP Core uses a patient-oriented approach to advance precision medicine in rheumatology by offering services in study design, research ethics, patient recruitment, clinical informatics, and disease expertise.
Specifically, the HSCP Core will:
• Provide consultation on human subjects study design, data collection, outcome measures, and research ethics for basic, translational, and clinical research studies of rheumatic diseases.
• Facilitate identification of patients with specific clinical phenotypes for basic, translational, and clinical research studies in rheumatology, leveraging collaborations between nationally recognized disease experts and clinical informaticists.
• Coordinate and provide resources for human subject recruitment and biospecimen collection.
• Offer state-of-the-art data retrieval and management resources, including construction of electronic health record-enabled registries.
• Assemble a panel of UCSF clinicians with expertise in particular rheumatic diseases, including RA, lupus, vasculitis, scleroderma, sjogren’s, spondyloarthropathies, as well as pediatric rheumatology and patient safety measures for Center rheumatic disease projects.